Chronic Pain Doesn't Show!

Chronic Pain Doesn't Show!
Chronic Pain Doesn't always Show, just because I don't look disabled, don't assume I'm NOT!

Tuesday, 21 August 2012

Crap day!!!

Ok so I suddenly get this cramp in stomach. It means get to toilet like right bloody now.
I trip over on the stairs, fall on bad arm.
great, so now I'm on the floor just about to shit my pants, when I realise if I yell for my carer it will be to late, I will have shit my pants.
So I drag myself across the landing into the bathroom, drag myself up on to the toilet, Fuck me, made it!

BUT I'M FUCKING FIT FOR WORK!!!!

Bloody Idiots the lot of them.

Please read Sue's blogg today!

http://diaryofabenefitscrounger.blogspot.co.uk/2012/08/disability-campaigning-2012.html?showComment=1345562382868#c6961093345427104007

Saturday, 18 August 2012

Todays blogg is about a conversation


  • Do I have to Volunteer to start this on my own, or are there people willing to join me, share the work load and work as one Voice to accomplish this Churchillian task. 
  • David - you've seen the bit where she says it's school hols, she has paperwork to do, a court case upcoming, and her own health is wobbling, right? Seriously, don't bother trying to email her even to offer help. I doubt she even has the time to check every email going.

    Hurrah that there are some folk doing something, great - not that I think writing stuff really makes a difference, and petitions aren't even worth the paper they're written on as has been shown time and time again, but it's a bit. it's something. So, keep doing something more.
  • Ok Oya's Daughter. so were else can I help and what else can I do. If we can organise ourselves and give little things to do to more people we will accomplish far more. You are right Sue does far to much on her own and on her plate. But as someone new to all this I have no idea what I can do other than drive my MP and there staff nuts and write my blogg. Oh and do research on how and why the government felt the had to change the 2008 descriptors which I score 72 points on. Point me in the right direction and I will glad go there and yell from the highest roof tops that this is not how you treat people!
    Delete
  • Well that's just it - you're asking ME what else you can do, or to point you in a direction. I shouldn't have to - seriously, there's loads of campaigns out there. The Centre for Welfare Reform was actually started by quite a few of the Lords the LibDems want so desperately to get rid of as a result of the horrible stuff they were seeing. It's an option to check in there....but at the end of the day, people will have to find their own way as long as they don't keep expecting other people to organise them.
  • But if we don't organise we don't speak with one voice, just lots of separate voices, and as I said, I am new to this, I didn't plan on becoming a disability rights campaigner just like I didn't plan on having an accident at work either. Thank you for some direction. Finding our own way only helps the individual person doing the fighting, when we should be organising and fighting as a single voice.
    Delete
  • Never going to have a single voice - if we wait for that we'll wait forever. Even during the civil rights movement there were a lot of different pockets. As long as the end goal is the same it's all that matters. Again, the issue here is choosing one person to lead and pressuring them to do it, rather than taking up lead ourselves. We're ill and disabled - sad truth of the matter is any number of us probably won't see the end of this road and what worries me is people will just flail around aimlessly when one "Leader" goes rather than pick up the slack.

    Stop waiting for "one voice", stop waiting for someone else to lead. Pick something, do it.
  • I am doing it, preparing a report on the huge bloody difference between what labour created and the cons are delivering, taking my MP to task, writing to everyone I can bloody think of and fighting my corner as hard as I can. I just lost my appeal and all my benefits, may loose my house to. I am also in pain every day, debilitating pain, I cannot move limbs, cannot turn my head and am fighting every day to just get out of bed, because I just had the rug pulled out from under my feet and am also now fighting depression. But still I get up and think who can I write to today, what can I do today to make ALL OUR LIVES BETTER, not just mine. I am not that selfish to just fight for myself, I am not alone and some of us out there cannot fight for themselves. I am not pressuring ONE person to lead but we could do with a group of leaders, as an ex soldier, one voice may be louder than a crowd but an organised group of people will accomplish far more. WE need to become ONE VOICE, that's all of us, not just me, not just Sue, not just any single one person, but all of us, shouting from the roof tops that this is unfair, unfit for purpose and a disgusting way to treat people. It is easy for the government to ignore 1000 individuals, but 1000 organised people in a group stating the same facts and the same properly researched information, they cannot ignore!
    Delete
  • Thursday, 16 August 2012

    The ESA Scam

    This morning I received my new ESA 50 form and now have to figure out how to fill it in and get across the ruddy obvious.

    Out of interest I pulled up the schedule 2 descriptors from the Employment and Support Allowance Regulations 2008 (http://www.legislation.gov.uk/uksi/2008/794/schedule/2/made) and did a quick score.

    Amazing I scored 72 Points, I didn't have to think about the answers, I just answered the questions they asked. No squeezing my brain to figure out what there actually asking, just simple straight forward activities and sensible descriptors. Ok some are a bit oddly worded, but by the time you have read your 5th government document you get used to those.

    Then I pulled out the ESA 50, I read each question, read it again because my brain couldn't understand the question, what are you actually asking. I still have no idea, so I called in my carer, yes I have one of those but am fit for work, the DWP and the Appeals panel both agree with the limited little box I need to fit in I am fit for work.
    I can get up and get dressed (shirt, track pants, robe, slippers) and make my own breakfast (porridge, microwave) so I am obviously capable of going to work.
    I can sit in an adjustable chair and I can use a keyboard, oh and yes, at 50 I can use a pencil, I can think of a few things I would like to use a pencil for, but none of them come under what it was designed for.
    So I am obviously fit for work.

    So between us we looked at the questions and the descriptors, discussed each one, scraped away at the strange wording and finally think we may have scraped out 30 points, as long as I am really careful how I answer the questions.

    Of course we all know that no matter how much medical evidence I include they won't believe me.

    I brutally expect to have appeal for a 5th time in 5 years, I have had to appeal everything, why because 1st my employers lied about the accident and said it didn't happen.
    Even now, long after the same DWP found it was an industrial accident, the same DWP found me to be physically 40% disabled for life and the same DWP awarded me Industrial Injuries Benefit at 40% for Life.
    I am still fighting.

    Wednesday, 15 August 2012

    Sunday, 12 August 2012

    A bit of good news, I need that today!

    Well some good news, since it has been more than 6 months since the original decision i can apply to go on ESA tomorrow and start from scratch. Did my own assessment based on there legal descriptors and I get 42 Points, if i only needed 15 how did i loose. Because it seems the appeal doctors are from ATOS and therefore not impartial and they only asked the questions they wanted to ask.

    They pulled the rug out from under me!


    Totally depressed today.
    Why have I had to fight every step of the way since the accident. 1st I had to prove it was an Industrial accident, then fight my employers through the High Court to get a settlement, then fight for my disability pension, then fight for Incapacity Benefit.
    Then they moved the goal posts and changed Incapacity Benefit to Employment Support Allowance and I had to fight again
    This time we lost and now I have to keep fighting.
    Shouldn't I be putting all this limited energy I have each day into trying to get better, not FIGHTING for my RIGHT to BE DISABLED!

    Saturday, 11 August 2012

    Strange day

    Well after getting home, posting that I lost my appeal.
    I finally got around to opening the Post. Lo and behold a Letter from D Raab MP.
    Enclosed was the most amazing letter, Oh why Couldn't the post have come before I had to leave home.
    It was a letter from The RH Chris Grayling MP, Minister of Employment, about me and my case.
    It even had an apology for loosing my ESA 50 form.
    More Importantly the letter refers to the Medico Legal Report and declares that Mr O'Dowd is a "Medical Legal Expert"
    Thank you so much Mr Grayling, now if your proof readers actually studied english would have helped, as they have referred on 2 occasions to what Mr O'Dowd said as if I have said it.
    The best bit is Mr Grayling refers to the fact that the Expert has found me 60% disabled and highly unlikely I will ever return to work.
    On the other side of the coin, the DWP obviously didn't supply everything or it wouldn't say there is nothing wrong with ESA 85 form which is full of false hoods and in some cases out right lies.

    I Lost My Appeal for ESA


    Well, I went to the appeal hearing this morning feeling confident everything would be okay. However I Lost!
    I scored 6 points up from 0 points, but not enough, therefore I am Fit for work! It seems that a MEDICO LEGAL Report stating I am 60% disabled doesn't count for anything, nor does the fact the same report states "it is highly doubtful Mr Finch will ever return to any meaningful employment "
    If it's not in the DWP ESA 50 descriptors it doesn't count and they moved the goal posts so far away from Incapacity Benefit I am amazed anyone qualifies.