Chronic Pain Doesn't Show!

Chronic Pain Doesn't Show!
Chronic Pain Doesn't always Show, just because I don't look disabled, don't assume I'm NOT!

Saturday, 18 August 2012

Todays blogg is about a conversation


  • Do I have to Volunteer to start this on my own, or are there people willing to join me, share the work load and work as one Voice to accomplish this Churchillian task. 
  • David - you've seen the bit where she says it's school hols, she has paperwork to do, a court case upcoming, and her own health is wobbling, right? Seriously, don't bother trying to email her even to offer help. I doubt she even has the time to check every email going.

    Hurrah that there are some folk doing something, great - not that I think writing stuff really makes a difference, and petitions aren't even worth the paper they're written on as has been shown time and time again, but it's a bit. it's something. So, keep doing something more.
  • Ok Oya's Daughter. so were else can I help and what else can I do. If we can organise ourselves and give little things to do to more people we will accomplish far more. You are right Sue does far to much on her own and on her plate. But as someone new to all this I have no idea what I can do other than drive my MP and there staff nuts and write my blogg. Oh and do research on how and why the government felt the had to change the 2008 descriptors which I score 72 points on. Point me in the right direction and I will glad go there and yell from the highest roof tops that this is not how you treat people!
    Delete
  • Well that's just it - you're asking ME what else you can do, or to point you in a direction. I shouldn't have to - seriously, there's loads of campaigns out there. The Centre for Welfare Reform was actually started by quite a few of the Lords the LibDems want so desperately to get rid of as a result of the horrible stuff they were seeing. It's an option to check in there....but at the end of the day, people will have to find their own way as long as they don't keep expecting other people to organise them.
  • But if we don't organise we don't speak with one voice, just lots of separate voices, and as I said, I am new to this, I didn't plan on becoming a disability rights campaigner just like I didn't plan on having an accident at work either. Thank you for some direction. Finding our own way only helps the individual person doing the fighting, when we should be organising and fighting as a single voice.
    Delete
  • Never going to have a single voice - if we wait for that we'll wait forever. Even during the civil rights movement there were a lot of different pockets. As long as the end goal is the same it's all that matters. Again, the issue here is choosing one person to lead and pressuring them to do it, rather than taking up lead ourselves. We're ill and disabled - sad truth of the matter is any number of us probably won't see the end of this road and what worries me is people will just flail around aimlessly when one "Leader" goes rather than pick up the slack.

    Stop waiting for "one voice", stop waiting for someone else to lead. Pick something, do it.
  • I am doing it, preparing a report on the huge bloody difference between what labour created and the cons are delivering, taking my MP to task, writing to everyone I can bloody think of and fighting my corner as hard as I can. I just lost my appeal and all my benefits, may loose my house to. I am also in pain every day, debilitating pain, I cannot move limbs, cannot turn my head and am fighting every day to just get out of bed, because I just had the rug pulled out from under my feet and am also now fighting depression. But still I get up and think who can I write to today, what can I do today to make ALL OUR LIVES BETTER, not just mine. I am not that selfish to just fight for myself, I am not alone and some of us out there cannot fight for themselves. I am not pressuring ONE person to lead but we could do with a group of leaders, as an ex soldier, one voice may be louder than a crowd but an organised group of people will accomplish far more. WE need to become ONE VOICE, that's all of us, not just me, not just Sue, not just any single one person, but all of us, shouting from the roof tops that this is unfair, unfit for purpose and a disgusting way to treat people. It is easy for the government to ignore 1000 individuals, but 1000 organised people in a group stating the same facts and the same properly researched information, they cannot ignore!
    Delete
  • 2 comments:

    1. I agree on both sides, but her attitude SUCKS: just to pick out one thing as an example: her telling someone who can't DO much more than write letters etc that 'writing anything makes no difference' is disheartening at best. Great way to inspire more people to put pen to paper and maybe work up to doing more, within the limits of their abilities. I would have thought that she'd have a lot more compassion and understanding as she has a disabled mother!? Every little helps the cause, and is also probably extremely good for the individual to feel empowered rather than feeling powerless and giving up!
      Remember, many solo efforts can cover more ground overall-reach more individuals-so its valuable in its own way.
      However, it often takes a natural leader to emerge before people will step up; someone who inspires. Some people are natural followers and will put their support to a group venture where they wouldn't know what to do alone. I see her concern that the group would collapse if that leader then became too ill to continue, but to be fair, there's nothing to say that leader must be ill or disabled; on the flip side of the coin, losing someone important can often rally people like nothing else, and what David suggested was more organised and group-led, which would obviously avoid the issue of 'the leader kicking the bucket' whilst still being there to guide those who want some direction.

      ReplyDelete
    2. "don't bother to email her even to offer help"... I'm gobsmacked by that bit. I woulda thought she'd appreciate all letters of support and offers of help, no matter how busy she is! Just knowing she has people supporting her... are you sure this isn't a troll!?

      ReplyDelete